INTERNET AS A SOURCE OF INFORMATION FOR PARENTS OF CHILDREN WITH DEVELOPMENTAL DISABILITIES AND/OR CHRONIC ILLNESSES
DOI:
https://doi.org/10.46793/PP231218012CKeywords:
child, developmental disabilities, chronic illness, internet, parentsAbstract
Introduction: Studies indicate that the internet has become an important source of information for parents of children with developmental disabilities/chronic illnesses as they search for specific information concerning children’s health/condition and development.
Objective: The aim of this research is to assess the way parents use the Internet and their approach in finding information regarding the children’s condition or health and means of support for the whole family.
Methods: The online questionnaire, made for the purposes of this research, was filled out by 104 participants, ages 18 to 45, which consists of 35 questions organized in five sections: information about parents; information about the child; information about internet research; information about the professional that parents are in contact with; information about the society.
Results: The most frequent searched information are the ones related to the process of rehabilitation and raising the child. The results also show the lead expert from whom parents get the most information is the doctor. The characteristic trait of expert which parents value the most is shared involvement in the decision making process. Furthermore, the experience and recommendations from society have a significant influence on parents.
Conclusion: It is necessary to promote the importance of open communication between parents and health workers that is based on trust. It is also important to promote parental involvement in all aspects of child rearing.
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